Archive for category chronic illness

My Lupus Speech: Lupus Awareness Month

The Lupus Foundation of America has posted some guidelines on how to write a lupus “speech” to help explain the disease.  You can find the link at the end of my post. So here I am, nearly at the end of Lupus Awareness Month, finally getting around to writing my own speech.     What […]

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Worshiped by Wolves

This meme showed up in my Facebook news feed the other day. It was love at first sight.  (Although I might change “mist” to “fog” to reflect my lupus-scrambled brain.)  I like being linked to a wolf.  From almost the beginning, I have envisioned lupus as an invisible wolf living with me, peaceful most of […]

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At Least…

I hadn’t really planned to write a post this month – I’m trying hard not to think right now – but someone brought up the old “at least” again, and it was too much to ignore. “At least it’s not cancer,” they say, when you tell them you have a disease. Any disease. Lupus, fibromyalgia, […]

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Who’s the April Fool?

So yesterday The Mighty published one of my essays, a bit about living with invisible illness.  That’s considered non-fiction rather than fiction.  I’ve spent almost 40 years learning how to write fiction, so I guess the joke’s on me this year.  But hey, it’s another notch to add to my list of credits. If the […]

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I’m okay… but maybe I’m not

Tomorrow (or yesterday, when I post this) I have a New Patient appointment. Yep, I’m starting over again with a new doctor at the county hospital, one who can refer me to the specialists I need. I hope. I don’t want to go. But I was hospitalized 13 months ago – that’s more than a […]

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Dogs Are Lucky They Don’t Read

This morning, my blind dog went in the back bedroom. He doesn’t usually go in there, but I could hear his toenails tapping on the wood tiles. I knew what he was doing. He was walking around and around and around in circles. When he first started circling, it bothered me. I was afraid. I […]

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Women’s March: Why I March

UPDATE (1/22/17): What a wonderful day it was!  An incredible turnout of marchers, all over the world!  A couple of pics:   And this! Check out the Disability March page. https://disabilitymarch.com/2017/01/22/libby-block/  – – – – – original post: I am marching today in the Women’s March on Washington DC – along with sister marches in […]

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