Archive for category chronic illness

Worshiped by Wolves

This meme showed up in my Facebook news feed the other day. It was love at first sight.  (Although I might change “mist” to “fog” to reflect my lupus-scrambled brain.)  I like being linked to a wolf.  From almost the beginning, I have envisioned lupus as an invisible wolf living with me, peaceful most of […]

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At Least…

I hadn’t really planned to write a post this month – I’m trying hard not to think right now – but someone brought up the old “at least” again, and it was too much to ignore. “At least it’s not cancer,” they say, when you tell them you have a disease. Any disease. Lupus, fibromyalgia, […]

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Who’s the April Fool?

So yesterday The Mighty published one of my essays, a bit about living with invisible illness.  That’s considered non-fiction rather than fiction.  I’ve spent almost 40 years learning how to write fiction, so I guess the joke’s on me this year.  But hey, it’s another notch to add to my list of credits. If the […]

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I’m okay… but maybe I’m not

Tomorrow (or yesterday, when I post this) I have a New Patient appointment. Yep, I’m starting over again with a new doctor at the county hospital, one who can refer me to the specialists I need. I hope. I don’t want to go. But I was hospitalized 13 months ago – that’s more than a […]

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Dogs Are Lucky They Don’t Read

This morning, my blind dog went in the back bedroom. He doesn’t usually go in there, but I could hear his toenails tapping on the wood tiles. I knew what he was doing. He was walking around and around and around in circles. When he first started circling, it bothered me. I was afraid. I […]

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Women’s March: Why I March

UPDATE (1/22/17): What a wonderful day it was!  An incredible turnout of marchers, all over the world!  A couple of pics:   And this! Check out the Disability March page. https://disabilitymarch.com/2017/01/22/libby-block/  – – – – – original post: I am marching today in the Women’s March on Washington DC – along with sister marches in […]

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Cripple Punk: a definition in real life

Once upon a time there was a husband, a wife, and a baby girl. The wife was sick, and the sickness affected her legs after the baby girl was born.  The wife had trouble walking.  She worried about dropping the baby.  So one day she bought a cane to help her walk.  It was so […]

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